Psychosocial Oncology and Palliative Care in Hong Kong: The First DecadeAs the evidence-base for clinical practice in the management of life-threatening diseases and care at the end of life increases, it is apparent that psychosocial factors play a most profound role, influencing outcomes at every level from quality of life and satisfaction with clinical services through to duration of survival and mortality. This book documents some, but by no means all, of the developments that have occurred in the past decade in the area of psychosocial oncology and palliative care in Hong Kong. Contributions describing interventions by practitioners involved in service development in nursing, social work and clinical psychology, are complemented by chapters describing academic research and theoretical perspectives. The unique cultural mix of Hong Kong is given rich emphasis in the adaptations made by practitioners and academics to the interventions and theoretical issues outlined. As both a documentation of the efforts of some of those who helped psychosocial oncology and palliative care evolve in Hong Kong, and as a reflection of the need to more critically evaluate the impact of intervention efforts in health care, this volume provides a valuable resource. Nurses, social workers, psychologists and doctors involved in delivering or planning cancer treatment or palliative care will find this book useful. This book challenges many attitudes prevalent in Hong Kong and will, we hope, begin to break some of the taboos that continue to generate unnecessary suffering among the people cared for by our health care systems. The valuable experience documented in these pages can help others build the next generation of services to those with life-threatening illness and those at the end of life. |
From inside the book
Results 1-5 of 58
Page 13
... person . A HISTORY OF HOSPICE CARE IN HONG KONG The development of the hospice movement in Hong Kong during the 1980s was similarly the result of the vision of one nurse . Lucy Chung was working in a hospital caring for patients who ...
... person . A HISTORY OF HOSPICE CARE IN HONG KONG The development of the hospice movement in Hong Kong during the 1980s was similarly the result of the vision of one nurse . Lucy Chung was working in a hospital caring for patients who ...
Page 14
... person's life , while acknowledging that the length of life left may be very short . The seed had been sown for hospice care to develop in Hong Kong . Other hospitals were starting their own small service , for example , Haven of Hope ...
... person's life , while acknowledging that the length of life left may be very short . The seed had been sown for hospice care to develop in Hong Kong . Other hospitals were starting their own small service , for example , Haven of Hope ...
Page 17
... person does not just lie , zombie - like , in bed waiting to die . Instead , many patients under the care of a hospice team are able to continue working or leading a fulfilling lifestyle until just shortly before their death . The first ...
... person does not just lie , zombie - like , in bed waiting to die . Instead , many patients under the care of a hospice team are able to continue working or leading a fulfilling lifestyle until just shortly before their death . The first ...
Page 19
... person is going to die at some time . The fears of patients are likely to be very similar to the things you would be afraid about , if you were in the patient's position . However , they may also be different . Lack of knowledge about ...
... person is going to die at some time . The fears of patients are likely to be very similar to the things you would be afraid about , if you were in the patient's position . However , they may also be different . Lack of knowledge about ...
Page 23
... person receives a poor diagnosis , he or she experiences a loss of dreams and ambitions . The future is no longer assured , there is often a realization that long - term plans may be inappropriate . 2. Loss of control : Once treatment ...
... person receives a poor diagnosis , he or she experiences a loss of dreams and ambitions . The future is no longer assured , there is often a realization that long - term plans may be inappropriate . 2. Loss of control : Once treatment ...
Contents
13 | |
29 | |
The Quality of Life of Cancer Patients Receiving | 55 |
Psychosocial Support for Parents of Children With Cancer | 75 |
The Illness Experience of Patients With Nasopharyngeal | 125 |
Lost for Words Improving Care for Dying People | 143 |
An Empowerment Group for Chinese Cancer Patients | 167 |
Using Creative Arts | 189 |
Death Awareness and Palliative Care | 213 |
Bereavement | 233 |
Benefits and Drawbacks of Chinese Rituals Surrounding | 255 |
The Next Decade or a New Millenium? | 271 |
Index | 277 |
Common terms and phrases
analgesic anxiety art therapy assessment behaviour bereavement breast cancer centre Chan chemotherapy child Chinese cancer patients clinical communication coping strategies counselling creative arts cultural death decision-making depression developed diagnosis disease doctors dying patients effective emotion-focused coping emotional experience facilitate FACT-G Fallowfield family members fear feelings funeral grief group members HCPs health status help patients Hong Kong Hong Kong Government hospice care impact important improve Leung living loss maladjustment to illness Martinson mastectomy medicine mother nasopharyngeal carcinoma NPC patients Nurs nurses oncology outcome Oxford pain control palliative palliative care parents participants perceived person physical problem-focused coping problems programme Psychol psychologist psychosocial qi gong Queen Mary Hospital radiotherapy relationship reported rituals score sessions short-term adjustment side-effects Social Administration social workers spiritual stress suffering symptoms therapeutic treatment University of Hong University Press visual analogue scale well-being
Popular passages
Page 38 - One of the essential qualities of the clinician is interest in humanity, for the secret of the care of the patient is in caring for the patient.
Page 32 - Silent and boundless, Independent and changeless, Moving through immensity tirelessly, It may be regarded as the mother of the world. I do not know its name; I style it "Tao" or "Way"; And, in the absence of a better word, call it "the Great.
Page 55 - Their definition of quality of life is defined as: an individual's perception of their position in life in the context of the culture and value systems in which they live, and in relation to their goals, expectations, standards and concerns.
Page 136 - ... self-direction, autonomy, and responsibility toward oneself and others • to become aware of one's choices and to make choices wisely • to make specific plans for changing certain behaviors and to commit oneself to follow through with these plans • to learn more effective social skills • to become more sensitive to the needs and feelings of others • to learn how to confront others with care, concern, honesty, and directness • to move away from merely meeting others...
Page 104 - Folkman (1984) define coping as "constantly changing cognitive and behavioral efforts to manage specific external and/or internal demands that are appraised as taxing or exceeding the resources of the person
Page 55 - refers to patients' appraisal of and satisfaction with their current level of functioning compared to what they perceive to be possible or ideal
Page 9 - Chinese and Western health care systems: Professional stratification in a modernizing society. In Social Life and Development in Hong Kong, eds.
Page 69 - R. 1996. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Qual Life Res 5(3):309-320.
Page 70 - Development and validation of the Functional Assessment of Human Immunodeficiency Virus Infection (FAHI) quality of life instrument. Qual Life Res, 1996, 5(4):45O463.