Palliative Care, Social Work and Service Users: Making Life Possible

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Jessica Kingsley Publishers, Nov 15, 2006 - Social Science - 272 pages

This unique book provides a rare look at social work and palliative care from the perspective of service users. It is the first to investigate specialist palliative care social work from this viewpoint.

Drawing on new original research, the authors examine service users' experiences of social work and palliative care, tracking their journeys through it, exploring the care they receive and the effects of culture and difference through their first hand comments and ideas. The writers link service users' critiques with broader debates and developments in social work and palliative care and consider the implications of the book's findings for the formation of policy and practice and for future professional education and training.

A groundbreaking text, Palliative Care, Social Work and Service Users is of particular value to social work professionals, palliative care workers, educators, researchers and policy makers.

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What Service Users Say
Developing the Discussion
How We Carried Out the Research
The Interview Schedule
Subject Index
Author Index

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Page 27 - The social work profession promotes social change, problem solving in human relationships and the empowerment and liberation of people to enhance well-being. Utilising theories of human behaviour and social systems, social work intervenes at the points where people interact with their environments. Principles of human rights and social justice are fundamental to social work.
Page 27 - Social care workers must: • protect the rights and promote the interests of service users and carers; • strive to establish and maintain the trust and confidence of service users and carers...
Page 27 - Promote the independence of service users while protecting them as far as possible from danger or harm. Respect the rights of service users while seeking to ensure that their behaviour does not harm themselves or other people.
Page 21 - Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.
Page 155 - This is one principal difference between social work and some of the other professions. In surgery, dentistry, and law, for example, a good interpersonal relationship is desirable for the perfection of the service, but it is not necessary for the essence of the service. The surgeon may not have a good bedside manner; the dentist may be inconsiderate of the patient's feelings; the lawyer may be cold and overly businesslike. But if the surgeon operates successfully, if the dentist heals the ailing...
Page 27 - Prepare for and -work -with individuals, families, carers, groups and communities to assess their needs and circumstances.
Page 155 - ... manner; the dentist may be inconsiderate of the patient's feelings; the lawyer may be cold and overly businesslike. But if the surgeon operates successfully, if the dentist heals the ailing tooth, and if the lawyer wins the case, they have performed the essential service requested. Not so the caseworker. A good relationship is necessary not only for the perfection, but also for the essence, of the casework service in every setting, (p.
Page 31 - In 2003, for example, the government established a major NHS consultation, Choice, Responsiveness and Equity in the NHS and Social Care, which placed a specific emphasis on patient and user involvement and which directly involved service users in eight officially appointed task groups, including one focusing on 'long-term conditions' which addressed palliative care issues (Department of Health/NHS 2003).

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About the author (2006)

Peter Beresford is Professor of Social Policy and Director of the Centre for Citizen Participation at Brunel University, Visiting Fellow at the University of East Anglia's School of Social Work and Psychosocial Studies, Trustee of the Social Care Institute for Excellence and Chair of Shaping Our Lives. Lesley Adshead is a research associate at Birkbeck, University of London. She was formerly a senior social worker at St John's Palliative Care Centre and taught Specialist Palliative Care Social Work at Middlesex University. Suzy Croft is a senior social worker at St. John's Palliative Care Centre and Research Fellow at the Centre for Citizen Participation at Brunel University. She is a trustee of two leading UK palliative care organisations and she is a member of the editorial collective of Critical Social Policy.

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