Palliative Care, Social Work and Service Users: Making Life PossibleThis unique book provides a rare look at social work and palliative care from the perspective of service users. It is the first to investigate specialist palliative care social work from this viewpoint. |
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Page 42
... she decided to turn to a hospice for help. He also had cancer but had not considered hospice support for himself. My husband was horrified...hospice – terminal, you know, the last resort. (Woman patient, white UK, age group 66–75) That ...
... she decided to turn to a hospice for help. He also had cancer but had not considered hospice support for himself. My husband was horrified...hospice – terminal, you know, the last resort. (Woman patient, white UK, age group 66–75) That ...
Page 44
... she was one of many who drew a distinction between hospice and hospital care. She said: I think the atmosphere's good when you go in there, it's a different atmosphere to going in a hospital...and the people in there are different aren ...
... she was one of many who drew a distinction between hospice and hospital care. She said: I think the atmosphere's good when you go in there, it's a different atmosphere to going in a hospital...and the people in there are different aren ...
Page 45
... she was unprepared for his death soon after referral: By the time he got to [the hospice] he was quite ill, they ... she made about coming here [to the hospice]...and when he said no, she didn't bother asking again, and it wasn't until ...
... she was unprepared for his death soon after referral: By the time he got to [the hospice] he was quite ill, they ... she made about coming here [to the hospice]...and when he said no, she didn't bother asking again, and it wasn't until ...
Page 46
... She couldn't do enough for him... (Bereaved woman, white UK, age group 36–45) However, many people were initially reluctant to respond to our question, and comments like 'you wouldn't want to know' were common. We found that, when ...
... She couldn't do enough for him... (Bereaved woman, white UK, age group 36–45) However, many people were initially reluctant to respond to our question, and comments like 'you wouldn't want to know' were common. We found that, when ...
Page 48
... –55) Some service users had been let down as promises had not been kept. This woman had seen a non-specialist social worker earlier in her illness: I will do this for you [she said] but it 48 PALLIATIVE CARE, SOCIAL WORK AND SERVICE USERS.
... –55) Some service users had been let down as promises had not been kept. This woman had seen a non-specialist social worker earlier in her illness: I will do this for you [she said] but it 48 PALLIATIVE CARE, SOCIAL WORK AND SERVICE USERS.
Contents
| 39 | |
Developing the Discussion | 131 |
How We Carried Out the Research
| 227 |
The Interview Schedule
| 247 |
References
| 252 |
Subject Index
| 261 |
Author Index
| 266 |
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Common terms and phrases
able approach areas asked assessment Bereaved woman broader cancer care service users care social worker carers Chapter cialist palliative clear concerns cope couldn’t death didn’t difficult discussion group emotional evaluation example experience explore feedback feel friends groupwork highlighted hospice identified important included individual interview issues liative care social life-limiting illnesses lives Macmillan nurse motor neurone disease negative number of service nurses offer palliative care service palliative care social palliative care teams participants particular people’s person problems profes professional range referral relation relationship role seemed seen service users felt service users told she’s small number social work practice social work service social work support social worker someone sometimes specialist palliative specialist palliative care steering groups talk things tive care social valued views wasn’t white UK Woman patient
Popular passages
Page 27 - The social work profession promotes social change, problem solving in human relationships and the empowerment and liberation of people to enhance well-being. Utilising theories of human behaviour and social systems, social work intervenes at the points where people interact with their environments. Principles of human rights and social justice are fundamental to social work.
Page 27 - Social care workers must: • protect the rights and promote the interests of service users and carers; • strive to establish and maintain the trust and confidence of service users and carers...
Page 27 - Promote the independence of service users while protecting them as far as possible from danger or harm. Respect the rights of service users while seeking to ensure that their behaviour does not harm themselves or other people.
Page 21 - Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.
Page 155 - This is one principal difference between social work and some of the other professions. In surgery, dentistry, and law, for example, a good interpersonal relationship is desirable for the perfection of the service, but it is not necessary for the essence of the service. The surgeon may not have a good bedside manner; the dentist may be inconsiderate of the patient's feelings; the lawyer may be cold and overly businesslike. But if the surgeon operates successfully, if the dentist heals the ailing...
Page 27 - Prepare for and -work -with individuals, families, carers, groups and communities to assess their needs and circumstances.
Page 155 - ... manner; the dentist may be inconsiderate of the patient's feelings; the lawyer may be cold and overly businesslike. But if the surgeon operates successfully, if the dentist heals the ailing tooth, and if the lawyer wins the case, they have performed the essential service requested. Not so the caseworker. A good relationship is necessary not only for the perfection, but also for the essence, of the casework service in every setting, (p.
Page 31 - In 2003, for example, the government established a major NHS consultation, Choice, Responsiveness and Equity in the NHS and Social Care, which placed a specific emphasis on patient and user involvement and which directly involved service users in eight officially appointed task groups, including one focusing on 'long-term conditions' which addressed palliative care issues (Department of Health/NHS 2003).